Baby Boy Beats The Odds - News and Weather For The Quad Cities -

Baby Boy Beats The Odds


Boone Begner spent 4-months in the hospital. He went through a number of surgeries. But he's well and breathing today. No thanks to the rare disease he suffers from.

"We really didn't have much hope and they weren't ever giving us too much hope, but we just kept on the positive side," said his mother, Lisa Begner.

He suffers from a rare disease called Heterotaxy Syndrome. It's when all your organs, blood vessels and arteries are on the opposite side of where they normally should be-which causes many internal issues.

4 out of 1-million babies are diagnosed each year. Baby Boone is one of them.

"It was tough, but you look at him, he's beautiful. He kept fighting he kept going he kept proving them wrong with his strong will, his stamina, it was just amazing," she said.

When Lisa was 16-weeks pregnant doctors found out he had a heart defect. She says they didn't give her much hope, and even gave her the option to abort.

"He wasn't going to make it through the pregnancy, he was going to be a still birth. He wasn't going to make it through the delivery, but they weren't going to do a cesarian -section-wouldn't survive to long after birth," said Begner.

But he did make it. Life expectancy for those with the syndrome is unknown, but up until 10-years ago no one made it past six-months. Through it all, Lisa says she couldn't have stayed positive if it weren't for him.

She also says he will eventually need a liver transplant between the age of 6 and 8.

 If you would like to help little Boone and his family with expenses you can click on the link below: